Resources
Support Group Meetings
The Fight the Flame Support Group was established in Charlotte shortly after we began holding the annual 5k races.
We meet the 2nd Saturday of each month from 1-3pm.
Each month we discuss a different subject – topics are suggested by group members. Topics range from: traveling with CRPS; helping through the holidays; alternative treatments; etc. We bring in guest speakers, have workshops, and more.
Our members are very diverse. We have members who have had CRPS for 6 months – 30 years; men/woman; some right here from Charlotte, and others who drive almost 3 hours for each meeting. We have new people join us almost each session.
At every meeting, caregivers (spouses, partners, etc) are always welcome to be a part of our meetings. The location is subject to change but will always be announced in emails and social media.
Where Can I Find Out More?
1. Overall CRPS Information
If you are in need of additional general information about CRPS, Burning Nights can be a great help! https://www.burningnightscrps.org/
2. Questions about CRPS?
Dr. Hooshmand’s RSD (now called CRPS) puzzles can help answer many questions you might have. https://www.rsdrx.com/
3. More Information on Rare Diseases
National Organization for Rare Disorders advocates and funds research, education, and networking among service providers.
https://rarediseases.org/rare-diseases/reflex-sympathetic-dystrophy-syndrome/
4. Current Research Being Done for CRPS?
The NIH provides information from the government and is in charge of biomedical and public health research
https://www.ninds.nih.gov/Disorders/All-Disorders/Complex-Regional-Pain-Syndrome-Information-Page
Social Security & Workers Compensation
There are many questions when you have CRPS and want to file for Social Security and/or Workers Compensation. If you need assistance with either of these, please see the links provided for more information.
Social Security